My Boy: Part 87

JJ is still at school. He should be getting home in about an hour. I got some things done today but I miss him. I missed his presence when I went to the store and ran my errands. When he got on the bus this morning, I already wanted him back home. I know that I am fortunate and blessed when he gets off the school bus in the afternoon. I am blessed that he is home with me and Daddy. It the days, sometimes when you start thinking, many children never make it home to their parents. There are many stories where you hear that children never made it home. It is heart breaking, it is sad. You put them on the bus in the morning....... (I cannot continue with that) FAITH, that is what we have to keep. The unwavering faith. I thank God every day for my husband and son. Each day, we let each other know we are loved, by words and by manners. It is such a blessing. He is a super kid. He is a great boy to mommy and daddy. He is super special. He has something in him that is awesome, too awesome for words. I am happy that he is my son. Let's see what he has to say about school today..Sometimes he says it is a secret..Hey, but at least he is happy and can vocalize his emotions. He is a talker. Sometimes at a million miles per hour. In the end, I thank god for that. What a huge difference/improvement from when my husband and I first sent him to school. He could not even talk. He was still in diapers. He was just diagnosed with ASD. But it is OK. Here we are 3 years later and what a turn around it has been. Like I always say, he may have autism but autism doe snot have him.

My Boy: Part 41 (Special)

I my eyes, my son is perfect. Although he did not start talking until he was 3 and a half. Although he was not fully potty trained until he was 4 and a half, in my eyes he is perfect. Although he is on the autism spectrum, in my eyes he is perfect. Although he is very sensitive to loud noises and sounds and covers his ears,in my eyes he is perfect. Although he always has to have a little toy in his hand and never wore shoes for the first year of his life, in my eyes he is perfect. Although he has speech therapy and occupational therapy, in my eyes he is perfect. Although he asks many questions multiple times for reassurance, in my eyes he is perfect. Although he has an IEP and is in specialized instruction Kindergarten, in my eyes he is perfect. Although he did not start eating independently until the age of 5, he is perfect in my eyes. Although he watches the same shows, same episodes in the same order when he gets to watch TV, he is perfect in my eyes. He can see. He can hear. He can walk. He can play. He is perfect in my eyes. He can do things for himself. He goes to school, interacts and has friends. He even told me yesterday that his school i snot new anymore because when he started he did not know anybody and know he has a lot of friends. Although he has obsessions, he is perfect in my eyes. Although he has to sleep with toys and I find small toys hidden in socks all the time, he is perfect in my eyes. Autism is his super power. He is unique. He loves to read, to play, to discover and most of all he loves God. He is a strong willed young boy who is wise beyond his years. A true gift from up above. I would not change him for the world. He is just awesome.

In 2008 God blessed us with Jorge Juan.My husband and I waited a long time for him. We have been married since 2001. Many times I have heard that I will not be able to have children or it would be very difficult to have children. That I can share with you all at another time. For now, enjoy life.
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My Boy: Part 23

I remember when Jorge would watch Toy Story 3 over and over again. Not just in one day, but day after day and week after week. That was his obsession for a while. I remember when he likes to wear the same pajamas night after night and watch the same cartoons. We have Hulu Plus and each day he will pick the same kind of shows with the exact episodes that he has recently viewed. He remembers the names of the episodes and asks to play each one. He likes the tags ripped off all of his stuffed animals and clothes. He likes to use the green crayon most often. If he falls asleep with a  certain T shirt on, he will want to wear it in the morning. He became obsessed with Ninja Turtles after giving up Buzz Lightyear which I never thought he would. He used to be extremely scared of flushing toilets and the sound of the hand dryer in public restrooms. The bright lights and strong sun are not his favorite things. Even though it is cold, he insists on waiting for the school bus outside. He switches between right and left hand when he does his homework and art work. He is becoming a karate master and insists that we "box". He talks. Yes, we waited years to hear his voice but he talks and he read..He loves to read. He loves books and he reads a lot. He has been reading for a very long time now. I am so proud of him. When he was three years old, he was said to be in the middle of the Autism Spectrum but from then and until forever he is in my heart.

He is high functioning. I thank God everyday for the blessings. Just because he was once in the middle does not mean that is where he was bound to stay. It is a spectrum for a reason. He has improved and continues to improve each day. It is important to keep going forward. Never giving up. Where there is Faith, there are great things. Dedication is a key factor. I am not trying to change my son at all. I do not wish Autism away. It is his super ability. I just work with him all the time to ensure that he will lead the best life possible with all the capabilities necessary. Going from non verbal to non stop talking in a couple years is a great window of opportunity of hope, that with Love and first and foremost God..All things are possible.

Thank you.

Comments and Questions are always welcome here.

Dany <3