Loorducation

Showing posts with label diagnosis. Show all posts
Showing posts with label diagnosis. Show all posts

Sunday, September 16, 2018

When I Knew

I was studying Teaching the Exceptional Child and I just knew. I mean I did not know anything but I knew. The similarities and scenarios. The symptoms and mannerisms. I knew. I just knew, But, I also knew nothing.

NOTHING and EVERYTHING all at once, the perfect PARADOX


Today there is:

Juancho



Do you really need to hold 6 different stuffed animals at once and cry if one of the fall to the ground?

Why are you running back and forth on your tippy toes?

Are the sounds really hurting your ears?


No coincidences, just blessings in disguise. Just at that time. At that exact time. Time stood still for what seemed to be about three years and at the same time, Time: it just flew on by and all of these thoughts circulated for what felt like three seconds.


It is all making sense but I still don't get it.

What do you mean my son has autism? Wait, OK that is why I am here. I am here to tell you my son has autism.  What IS Autism? What is our next step?

Whatever it takes.

WHATEVER it Takes.

WHEREVER it takes u.






I will make sure you fit in, all while standing out.

You will stand out. You were born to stand out.

After that day, I hugged him a little tighter and loved him more than ever.



My greatest professor
has not 1 degree



Sunday, September 2, 2018

A Super Power

When you hear him say, "Autism is my superpower!", it is amazing. The word autism, in our home, is not a taboo word. It is one of empowerment. It is one to embrace.

He is not lucky; he is blessed. Blessed that he can speak, blessed that he can hear, blessed that he can walk, blessed that he can eat and live a healthy and happy daily life of a child.

Autism does not inhibit him. Rather it inspires him and pushes him beyond limits that society has placed before him.

He did not speak until the age of three and half. He was at doctor appointment after doctor appointment. He saw many specialists. He also went to speech therapy and occupational therapy outside of school. He started Pre Kindergarten, in pull ups and not yet able to verbally communicate. He was placed on the middle of the spectrum and was given a label.

I am thrilled to say that he is high functioning and thriving! With LOVE and dedication, with hard work and determination and with acceptance, his world is one of joy without limits.

I often forget that he has an autism diagnosis. He is like every other typical child yet at the same time, so very unique.

If a parent does not want to admit or accept that their child has autism and does not seek out help, they are doing a disservice to the health and well being of their child. There is nothing to be ashamed of.

To learn of JJ's journey please refer to the archives where I have his stories posted.

Any questions or comments, please feel free to contact me.

There is still so much to share.

xoxo

Dany


Friday, September 5, 2014

My Boy: Part 87

JJ is still at school. He should be getting home in about an hour. I got some things done today but I miss him. I missed his presence when I went to the store and ran my errands. When he got on the bus this morning, I already wanted him back home. I know that I am fortunate and blessed when he gets off the school bus in the afternoon. I am blessed that he is home with me and Daddy. It the days, sometimes when you start thinking, many children never make it home to their parents. There are many stories where you hear that children never made it home. It is heart breaking, it is sad. You put them on the bus in the morning....... (I cannot continue with that) FAITH, that is what we have to keep. The unwavering faith. I thank God every day for my husband and son. Each day, we let each other know we are loved, by words and by manners. It is such a blessing. He is a super kid. He is a great boy to mommy and daddy. He is super special. He has something in him that is awesome, too awesome for words. I am happy that he is my son. Let's see what he has to say about school today..Sometimes he says it is a secret..Hey, but at least he is happy and can vocalize his emotions. He is a talker. Sometimes at a million miles per hour. In the end, I thank god for that. What a huge difference/improvement from when my husband and I first sent him to school. He could not even talk. He was still in diapers. He was just diagnosed with ASD. But it is OK. Here we are 3 years later and what a turn around it has been. Like I always say, he may have autism but autism doe snot have him.

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tooth1

Monday, January 27, 2014

Jorge Juan's Short Story

Jorge Juan is five years old. He is on the Autism Spectrum.
535033_3174082588331_593966042_n He was diagnosed at the age of 3. It was at that time, I was taking the class Teaching the Exceptional Child. I noticed some things that were different about my son that coincided what I was studying at the time. I brought him to the doctor. She diagnosed him upon seeing specialists as well. We followed up without stopping. He was not speaking and was not hearing well. I thought he was deaf. His hearing tests came back with results of 20 percent hearing or something close to that, I do not quite remember but his ears seemed plugged. A second hearing test was needed, so we did it and still the same results. It was a little tricky because he was not sitting still and could not communicate. So after a while we found out he had water in his ear.He has had many ear infections. He could not hear well due to this and we ended up getting tube sin his ears and his adenoids taken out a while after.

Then he visits a neurologist. It was a thorough exam and the doctor places him in the middle of the spectrum. At this time, he could not follow directions, stack blocks, wave, or other typical things that 3 year olds do. We left the office, my husband and I. We did not let that discourage us. We kept going and believed that is just the perception of this doctor. Everything will be fine. After this we visited a speech therapist for an evaluation.

And as you guessed he attended speech therapy. At that time he was not speaking. Maybe a few words here and there but he could not communicate well. It was difficult for him. At the every beginning, he would moan, point, hum and act out to get the attention of the therapist.The week after this he started his first year of pre kindergarten. I was nervous because he did not talk and how would they know, etc.

The teachers were great and they really helped him out. From the first day I told the lead teacher that Jorge has autism and she gave me a number to call for some special education things like evaluations and play group, so we did that.
autism diagnosis He received specialized instruction in class along with a speech therapist and occupational therapist from school.He also has an IEP. This was all declared after he has been evaluated by the board of education.

Little by little, he is doing it. The second year of pre kindergarten, he was talking in some words. He could put some words together and before we knew it he was making sentences here and there. He was receiving private speech therapy outside of school and during school time. the social interactions with teachers and peers opened him up. He needed it. It has helped him out tremendously. He was still in pull ups at the time and eventually was fully potty trained at about 4 and a half or a bit earlier. He was not eating independently either. He needed extra help with many basics but that did not stop us.

We kept going and going and today he is 5 and a half years old. He talks non stop. He never wets the bed and he can feed himself. He is writing and drawing now. he loves school and taking the bus. He looks forward to many things.

indexI almost forgot to mention that before. All the time. He was very figidity. He would hum loudly and pace back and forth, jump in place but most of all flap out of sensory overload.He was even tested for seizures because the neurologist thought something was up as f he stopped breathing or would black out during the time of this great excitement. It was like a blank stare sometimes for thirty seconds as if he was in his own world.

Today he asks a million questions a day and he tells stories. He shares his dreams. He plays and shares. He loves school time and family time. He communicates.

 

 

He is very sympathetic. He is simply amazing.
signs-of-autism-in-toddlers