Loorducation

Showing posts with label stims. Show all posts
Showing posts with label stims. Show all posts

Friday, August 1, 2014

My Boy: Part 81

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ESY ended more than a week ago but JJ still has been busy reading, writing, and of course, playing and experimenting. He did develop the humming sound again. It started about four days ago. It sounds like a long hmmmm, hmmmmmmmm, several times repeated over again. He used to do this type of stimming before he was able to speak. When he was non verbal, JJ would stim by running back and forth from the living room to the front door, humming really loudly and flapping his hands. Once he began to speak, at the age of almost 4, the verbal stim drifted away. So my husband and I were surprised to hear it again after all of this time, basically out of the blue. Instead of telling him to stop doing it, we asked him why he does it. Now, years ago before we knew he has autism and before we knew what was going on and how to make sense of it all, I would have told him to stop that. I have learned to have patience. As we all know sometimes it may run out but I thank God for learning every day and becoming stronger. It can be nerve wrecking but I try..I try to understand why so I ask him and he tells me it makes him happy. Now how are we supposed to tell a child to stop doing something that makes him happy (of course not self harming or harming others)?
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So we took him to the neurologist and the doctor told us to ignore the behavior. Ignore it because it will go away. he might be doing this due to not being in school and having that routine. SO for now, I have not heard it many times today. We will see. JJ told me that he does miss school and that he loves it. He misses his friends and being able to ride the bus each morning and afternoon. It is the little things that mean so much and that are very important.
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Thursday, May 1, 2014

My Boy: Part 61

He stayed home from school again. Still a little congested but thank God a while lot better. We went to Costco then he asked to go to Barnes and Noble . He loves it there. So we went. We had fun and read and played. It was enjoyable. He needed the fresh air and now he's back to being himself.  No medication. I just used honey and lime to clean his throat. That's all. He has been playing and using his activity books. He also checks on the seeds he planted and enjoys being a kid. Autism who? But he did tell me he loves to flap his hands because it makes him very happy.


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He borrowed my phone today and took many pics. This was one of them.

Monday, April 28, 2014

My Boy: Part 59

He is so sweet. Jorge Juan did not want to leave me alone in the house this morning because Daddy was not home from work yet. We went outside to wait for the school bus. He was happy. He got on the bus anyway. I told him I was going to be fine. He quickly shoved a small Buzz Lightyear into his jacket pocket and was ready to go. He has a friend on the bus that always waves to me. Today, I thought this little boy was waving but when I got a closer look, I realized that he was stimming and I looked and a tear began to fall. I understand it. I have seen it in my home. I see it in my home and wherever my son feels excited. I understand what this boy was doing but I still teared up. It is because I understand him and others who see him may not. they may make fun of him and judge him. My heart ached and when I told my husband, I was crying. I thought that it is not fair, people and children may not understand and they ay pick on him or whatever. It hit close to home because Jorge Juan is on the spectrum. He is my heart and if someone saw him stimming, what would they say/ What would they think? I just pray that when my husband and I are not around him that there are people around him who love and care for him. People that understand and respect him and will make him feel comfortable.

All children deserve to be comfortable and valued. My son does not have a disability, he has a super ability. I would not want to change his journey. I would rather change the world for him than change him for this world. I am his advocate, always. It is more than autism awareness, it is autism acceptance. I thank God for where my son is today because it has not always been that way. I have never prayed for a cure because he is an intelligent, loving, caring, sweet boy- there is nothing "wrong".  I have faith that things will get better because they have not just because of therapies, etc. No, it is faith and love , first and always. There are breakthroughs, yes I believe. But if autism has made my son the boy he is today, then we are here to stay.

This is his journey. Thank you for being a part of it.

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